|Institution:||University of Cape Town|
|Full text PDF:||http://hdl.handle.net/11180/9642|
Includes abstract. Tuberous Sclerosis Complex (TSC) is a multi-system disorder that includes a range of neuropsychiatric manifestations. The majority of individuals with TSC will have neuropsychiatric problems, with lifetime prevalence rates in the region of 90%. Survey results unfortunately suggest a vast gap between need and actual assessment/treatment. At the 2012 International TSC Consensus Conference the Neuropsychiatry panel coined the term TAND (TSC-Associated Neuropsychiatric Disorders) and recommended that all individuals with TSC should be screened for TAND at least annually. To aid in the systematic enquiry of the behavioural, psychiatric, intellectual, neuropsychological, academic and psycho-social difficulties experienced by individuals with TSC, a 'TAND Checklist' was developed to act as an 'aide-mémoire' to clinicians. Here we performed a pilot validation of the TAND Checklist.